Sign up to get updates from us
Shortly after Preston’s diagnosis I learned about Sibshops. Sibshops are in person or virtual events where special needs siblings will meet other sibs, have fun, laugh, talk about the good and not-so-good parts of having a sib with special needs, play some great games, learn something about the services their brothers and sister receive, and have some more fun.
During Covid I had the opportunity to take the facilitator training and have since started Sibshops in our area locally. It's a dream of mine to bring them to our CTNNB1 community virtually. Abby Turnwald, genetic counselor at Cincinnati Children's, reached out wanting to get involved within our community by volunteering her time. She too is a trained Sibshops facilitator and is bringing Sibshops to our community next month! Listen in today to meet her and watch for a link to get your children signed up!
https://www.curectnnb1.org/
#raredisease
#syndrome
