Episodes
June 5, 2024
DEBATE: If gene therapy for hemophilia B were available in Canada tomorrow, would you want to receive it?
In this podcast, Elizabeth Vansant, Mark Pervan, Murray Milne and Mathieu Jackson, all individuals with severe hemophilia B, are asked to debate the question: “If gene therapy for hemophilia B were available in Canada tomorr…
March 28, 2024
DEBATE: If gene therapy for hemophilia A were available in Canada tomorrow, Would you want to receive it?
In this podcast, Cleaven Pagani, Rick Waines, Paul Wilton and Emil Wijnker, all with severe hemophilia A and also members of the Canadian Hemophilia Society Blood Safety and Supply Committee, are asked to debate the question…
Dec. 18, 2023
What Other Approaches To Hemophilia Gene Therapies Are Down The Road?
The first generation of gene therapy for hemophilia, called gene insertion or gene addition, is now a reality, but it is not for everyone. Dr. Glenn Pierce explores other approaches to gene therapy in the research pipeline t…
Dec. 14, 2023
How Might Gene Therapy Be Delivered In Canada?
In this podcast, Dr. Jerry Teitel explores how gene therapy for hemophilia A and hemophilia B might be delivered to patients across Canada in an equitable way, even though the administration will occur in only some sites. He…
Dec. 12, 2023
How Might Gene Therapy Be Funded In Canada?
Gene therapy—a high-cost, one-time, potentially life-changing treatment—presents unique challenges for governments that make decisions on funding innovative treatments. Dr. Durhane Wong-Rieger presents creative ideas on new …
Dec. 7, 2023
What Is The Shared Decision-Making Process In Hemophilia Gene Therapy?
In this podcast, Dr. Jerry Teitel describes the process of shared decision-making prior to gene therapy in hemophilia A and hemophilia B, and how the nature of gene therapy itself makes shared decision-making so important. D…
Dec. 5, 2023
What Don’t We Know About Gene Therapy For Hemophilia?
In this podcast, Dr. Glenn Pierce explores what we know we don’t know and what we don’t even know we don’t know about the brand-new treatment which is gene therapy for hemophilia A and B. Glenn is a long-time researcher in c…
Dec. 1, 2023
What Is It Like To Receive Gene Therapy?
In this podcast, Brian O’Mahony explores the patient experience of gene therapy for hemophilia, from the shared decision-making process prior to gene therapy, to the administration itself, to the intense follow-up in the fir…
Nov. 30, 2023
What Are The Clinical Trial Results In Hemophilia Gene Therapy?
In this podcast, Dr. David Lillicrap presents the results of clinical trials in hemophilia A and hemophilia B gene therapy. He describes how high factor VIII and IX levels can rise, how predictable this response is from pers…
Nov. 17, 2023
Who Is Eligible For Hemophilia Gene Therapy?
In this podcast, Brian O’Mahony explores why gene therapy for hemophilia A and Hemophilia B is not for all patients. He describes what makes a person eligible, and in some cases ineligible, to receive the treatment. Brian is…
Nov. 16, 2023
What Is Gene Therapy For Hemophilia?
In this podcast, Dr. David Lillicrap describes in easy-to-understand language what gene therapy for hemophilia A and hemophilia B is, how it is administered and how it works. Dr. Lillicrap is a Professor in the Department of…
Nov. 15, 2023
Introducing: Gene Therapy for Hemophilia: Dream or Reality?
This is a series of podcasts featuring well-known patient and physician experts will provide important answers, for example: What are the clinical trial results in hemophilia GT? What is the shared decision-making process in…