Season 3 Coming July 2nd!! New Name, More Authenticity, More Magical.
March 25, 2023

Rare and Beautiful: Sifrim Hitz Weiss, A Mother's Journey

Rare and Beautiful: Sifrim Hitz Weiss, A Mother's Journey
Sifrim Hitz Weiss syndrome is one of the rarest genetics mutations in the world. My daughter just happens to be one of the unicorns with this genetic mutation. To have a child with a rare genetic condition is confusing and such a roller coaster ride. Listen to me and two other mothers talk about our journeys with this rare syndrome and what it’s like when you don’t know what can, will or won’t happen next.